Today my baby girl graduates from a Pavlik harness to Rhino brace. For the past 6 weeks, my little love bug has been confined by straps of felt and Velcro, a sight that wasn’t always easy for me to see. The new Rhino brace will still be confining, but we’ll at least be able to take it on and off for diaper changes, baths, car rides, and to steal unhindered snuggles every once in awhile. We’ll be able to give Emmanuella baths again. We’ll be able to see her feet again! These seem like such little things, but as we mark the halfway point of her treatment for hip dysplasia, these are things that can (and should!) be celebrated.
While the Pavlik harness and its challenges are not something that I would wish for other parents, I have to admit that our time with this device came with many lessons, some of which were incredibly valuable to me as a parent.
Lesson 1. It’s okay to grieve over what you’ve lost.
We never expected to have a child with hip dysplasia. Neither of us had even heard of the condition or understood what it meant at first. But we soon found out that our newborn wouldn’t be exactly as we pictured her. All of those precious newborn clothes in her closet wouldn’t get worn. We were being sentenced to six weeks of snap sleepers one size up (and leaving a few snaps undone at the bottom). And we could forget about bath time for awhile. And seeing her precious, tiny feet. We wouldn’t be able to hold her certain ways (Dustin’s favorite janguar-on-a-limb hold was out). The news of Emmanuella’s hip dysplasia meant that the ideas we had of the newborn state would be altered slightly. It is natural to grieve over a loss, including a loss of your expectations. So take that time. Let it out. Cry. I did one day while looking at those adorable clothes with the tags still on. It’s okay to be disappointed that things did not go according to plan. What’s not okay is when the grieving lasts forever. Because…
Lesson 2. You will adjust to the circumstances you’re given.
Really. You will. I feared that cuddling and breastfeeding would be awkward and diaper changes frustrating when working around the harness. It turned out that my fears were unwarranted because we adjusted to life in the harness just fine. When my sweet baby snuggled against my chest, I forgot that the harness was even there. And sure diaper changes are an extra challenge when you have to get a diaper under two sets of straps on each side. But you get used to it when that is the way life is. Now if you timed me changing Emmamuella against another new mom who didn’t have to work around a harness, I’d probably be just as fast. Because I’ve learned my way around it. Obstacles sometimes aren’t nearly as threatening as they seem at first.
Lesson 3. Parents of children with special needs are superheroes.
For a short period, we have a child with a special need. And it has given me so much respect for the parents who take care of special needs children for a lifetime. It takes a lot of time and energy to ensure you baby is receiving the proper treatment, even for something as minor as hip dysplasia. Emmanuella won’t remember her time in the Pavlik harness, but we will. We will remember the constant specialist visits and ultrasounds (and the extra bills that came with them). We will remember getting home from one orthopedic pediatrician visit across town, just to get a phone call that said come back to the hospital right now for an ultrasound or you’re not getting in for another two weeks. Most of the time it wasn’t that bad. But there were moments. And those who devote their lives to making sure their children are receiving the medical care they need deserve an award.
Lesson 4. Health is a gift.
In 6 more weeks, Emmanuella will hopefully be finished with her treatment. If her ultrasound is clear at that time, there is a 99% chance that her hip will be healed for life. This is the outcome we’ve been praying for since her birth, and right now everything is on track. There will still be follow ups for a couple years to make sure that her hip is growing correctly, but our months of a harness and a brace will be over. Having gone through all this, though, I will not be taking our child’s health for granted. A healthy baby is a gift. Our own health is a gift as well. And this experience will serve as a reminder to take care of our bodies and treat them like the temples God intended them to be.
Do you not know that your bodies are temples of the Holy Spirit, who is in you, whom you have received from God? You are not your own; you were bought for a price. Therefore honor God with your bodies. (1 Corinthians 6:19-20)